Serious question: how do you manage not to lose the organizers, and how do you remember to add stuff to it?

It always works a few days for me then I forget to bring it or add stuff and when I remember I feel like I ruined everything cause now there’s a gaping hole of nothing in it and don’t go back to it :(

I usually tell people that I’m not too sensitive, but simply more sensitive than others like themselves, and that they just don’t want to be considerate because it inconveniences them.

Lots of people get super flustered when that gets stated calmly and without much emotion. The key is not to yell or get emotionally, but to state it very calmly.

That way, they can’t retort with personal attacks and actually have to address what I said. Usually they point out that others are not as sensitive, or that the world doesnt revolve around me. My reply in those cases depends on the situation. It could be something like “That’s true, but I’m not other people, and this noise bothers me. Why is it so important to you to keep making it?”

If it is a family member, I try to point out that this is my home and I would like to be comfortable there, and I would try to figure out how to find a compromise.

When you are more calm, take him aside and ask him to respect your preference. Asking for a reason why is not respecting it. He can always ask for a reason, but if you can’t give him one, he still needs to accept that you have a preference. It also does not matter if he agrees or understands.

Edit: typo.

hugs well, now you know: you’re not lazy, this is your brain working against you. I found bribing myself with something I enjoy after I did one thing I don’t helps. It’s like giving my stubborn brainchild a lolli :)

Not the person you asked, but I always felt guilty for “claiming” a diagnosis, long after it was official. What if the doc was wrong? What if I’m just too lazy and need to get my shit together? Surely I’m just looking for excuses, because that’s what had been drilled into my head for over 30 years: I can’t be that exhausted, I’m just trying to get out of doing what I’m supposed to.

It’s a weird thing to use the word imposter syndrome on a diagnosis, but that’s exactly what it felt like. I don’t deserve a valid “excuse”. I am conning everyone into cutting me some slack when I’m really just lazy. Took me years of therapy - and, honestly, a job where they tell me I’m doing a lot and supporting my team, even though I still feel like I don’t do anything. The brainwashing is strong when you’re late-diagnosed :(

I’m grateful for my adult diagnosis (at age 35) because all of a sudden things made sense. I wasn’t being lazy - people liked to call me that, because on a good day with a topic that interests me I will outperform most people. The logical conclusion was if I can do it once, i can do it all the time, and when my performance is subpar it must be because I’m lazy.

The diagnosis has become my shield and armor. I’m not lazy, my brain just refuses to engage on things that do not interest me. There’s no way I’ll ever get economics, and it’s not because I’m lazy.

It helped me be kind to myself and adjust my plans and choices to my nourology. I may be shitty at economics and in being tactful with people, but I’m a great softwaretester, because I do care about people and want to help avoid making people cranky with dumb mistakes in software. The helpless rage I get from a piece of malfunctioning software is something I want to minimize.

Instead of struggling I enjoy my work now, and having a diagnosis allows me to communicate to people what to expect. I can’t read between the lines - if you want me to do A, tell me so. Don’t mention to me that B and C need someone that needs doing, because I may or may not get you want me to do that - but I sure as hell won’t get that you also want me to do A, even if it is a prerequisite.

I’m able to say that I work better with a dark, quiet place, so please don’t seat me next to the person who has meetings all day. I can probably work without these accomodations, but I’ll be miserable and my work quality will be poor.

Coming back to your question: you don’t need a diagnosis per se. I know people that I suspect are autistic but they would probably feel worse knowing it. But what I think you should do is read up on autism like crazy. For your kid, but also for yourself. Read accounts from autistic people, look for autistic spaces. There’s plenty of organizations that care for profit and not for actually helping autistic people.

What you will gain is insight into how autistics manage life, what helps them, and youecaneuse that knowledge to help your kid and maybe even find ways to improve your environment. Even if you feel well-adjusted, maybe understanding why something works for you and how youecan make it better can help.

The benefit in the diagnosis for me was understanding myself and the ability to adjust my environment to my needs. For me, the diagnosis is incredibly helpful, but for you and your unique situation, it may not. I heard from people in other places that an official diagnosis has negative legal effects on them. Go research, take away what you need, and once you digested the idea and feel you understand more about it ask yourself again if a diagnosis could benefit you.

You’ve lived so long without, a year or two probably won’t make a difference. If anything, hopefully more doctors are aware of autism and able to successfully diagnose you.